What to do when they need a lot of help
When caring for someone with dementia who needs significant assistance with daily activities like eating and mobility, family members can take several practical steps to provide support:
Create a Structured Routine
Establishing a consistent daily schedule can help reduce confusion and anxiety for the person with dementia. This routine should include:
Regular mealtimes
Consistent wake-up and bedtime hours
Scheduled activities and rest periods
Assist with Eating
Mealtime strategies:
Serve foods that are easy to chew and swallow
Cut food into small, manageable pieces
Use adaptive utensils if needed, such as spoons with larger handles
Offer one food at a time to avoid overwhelming choices
Provide gentle reminders and cues to continue eating
Encourage independence:
Allow extra time for meals
Sit with them and eat together to model eating behaviors
Offer finger foods when appropriate to promote self-feeding
Support Mobility
Safe movement:
Install handrails and grab bars in key areas of the home
Remove tripping hazards like loose rugs or clutter
Ensure good lighting throughout the living space
Use a gait belt when assisting with walking, if recommended by a healthcare professional
Encourage exercise:
Engage in gentle exercises together, such as short walks or seated movements
Use physical activities as opportunities for social interaction
Simplify Tasks
Break down complex activities into smaller, manageable steps. For instance, when dressing:
Lay out clothes in the order they should be put on
Provide clear, one-step instructions
Assist as needed, but encourage independence where possible
Maintain Dignity
Always strive to preserve the person's sense of self-worth:
nvolve them in decisions when possible
Offer choices, even if limited (e.g., "Would you like to wear the blue shirt or the green one?")
Speak to them directly, not about them to others in their presence
Ensure Safety
Home modifications:
Secure potentially dangerous items like medications or cleaning supplies
Install safety locks on cabinets and doors as needed
Consider using monitoring devices for wandering prevention
Provide Sensory Stimulation
Engage multiple senses to help maintain cognitive function:
Play familiar music
Offer textured objects to touch
Use aromatherapy with familiar scents
Practice Patience and Flexibility
Remember that abilities may fluctuate from day to day. Be prepared to adjust your approach as needed and remain calm and reassuring, even in challenging moments. By implementing these strategies, family members can provide comprehensive support for their loved one with dementia, enhancing their quality of life and maintaining their dignity throughout the progression of the disease.
Source: UCSF
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