Finding the right doctors and care team
Finding the right doctor and care team for a loved one with dementia is crucial for their well-being and for your peace of mind. It's about assembling a group of professionals who are not only skilled but also compassionate and understanding of the unique challenges dementia presents.
Start with a Specialist if one is available in your area: For dementia care, a neurologist, geriatrician, or a geriatric psychiatrist specializing in dementia can be more helpful than a general practitioner due to their specialized training and experience in managing such conditions. Ask for referrals from your primary care doctor or friends who have been in similar situations. Personal recommendations can be invaluable. However, many areas do not have one of these specialists, in which case work with your primary care provider closely to ensure you are getting the care your loved one needs. Also wait times to get into a specialist can be very long (6-9 months)
Consider the Medical Team’s Composition: An ideal dementia care team might include a primary care physician, a neurologist or geriatrician, nurses, social workers, occupational therapists, and possibly a neuropsychologist. Each plays a different but complementary role.
Evaluate Communication Style: Choose professionals who communicate clearly and compassionately, who listen attentively, and who make your loved one feel comfortable and respected.
Location and Accessibility: Consider the location of the doctor’s office or clinic. Proximity can be important for ease of travel, especially as the condition progresses. If possible, visit the doctor’s office to get a sense of the environment. A dementia-friendly office with patient and understanding staff can make a big difference.
Insurance and Costs: Ensure the healthcare professionals are covered by your insurance plan. Understand the costs involved, including out-of-pocket expenses, to avoid financial surprises.
Availability for Emergencies: Find out how the care team handles after-hours emergencies or urgent questions. Knowing there's a reliable point of contact can be very reassuring and can help prevent unnecessary trips to the Emergency Room.
Trust Your Instinct: Pay attention to your gut feeling after meeting with the doctor and care team. Trust and comfort with the care team are essential.
Remember, managing dementia is often a long-term journey, and having a reliable, understanding, and skilled care team can make a significant difference in the quality of life for your loved one and for you as a caregiver.
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