How to deal with a changing diagnosis
With our current and evolving understanding of different dementias, it is not uncommon to get a different diagnosis for your loved one after several years. As different behaviors, symptoms and imaging results come in, the diagnosis can change. If this happens to you, here are some areas to focus on:
Get a Clear Explanation: Ask the healthcare provider to explain the new diagnosis in simple terms. Understand how it differs from the previous diagnosis and what led to the change.
Discuss Treatment Implications: Understand how the new diagnosis affects the current treatment plan. Ask about any new treatments, changes in medications, or lifestyle adjustments needed. Changes in medications are very common when this happens.
Update Care Plan: Work with the healthcare team to update the care plan. This may include new medications, therapies, or changes in daily routines. Remember to update the diagnosis in the Alzheimer’s Care Partner app to get customized resources to the disease.
Inform Other Caregivers: Share the updated diagnosis and care plan with other family members, caregivers, or anyone involved in the person’s care.
Monitor Closely: Pay attention to how your loved one responds to any changes in treatment. Keep notes on any new symptoms or changes in behavior.
Seek Support: Adjusting to a new diagnosis can be challenging. Don't hesitate to reach out to support groups or professional counseling for both you and your loved one.
Stay Informed: Educate yourself about the new diagnosis. Understanding the condition helps in better managing it and communicating with healthcare providers.
Plan Ahead: Consider any long-term implications of the new diagnosis. This might involve looking into additional care options or making adjustments to living arrangements.
It’s normal to feel overwhelmed with a change in diagnosis, but staying informed and actively involved in your loved one's care can make a significant difference.
